CHAEN-RCAOH

Hereditary angioedema (HAE) is a rare genetic disorder characterized by episodes of swelling (edema attacks) in different areas of the skin or the internal organs. In particular, it occurs in the upper respiratory tract and intestine.

About CHAEN

The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act.

Vision

Enable HAE patients in Canada to receive appropriate support and care so that they are able to live full lives.

Mission

CHAEN unites physicians committed to ensuring all HAE patients in Canada have access to excellent care that reflects current management and treatment guidelines, and works to promote research and education.

Goals

To create a network of physicians across Canada who have expertise in the diagnosis and management of patients with HAE.
To create HAE Guidelines.
To create an HAE Patient Register.
To establish a plan for achieving Comprehensive Care for patients.
To establish goals and a program to encourage HAE Research.

What is HAE?

Approaches to dealing with HAE

Wallet cards & other resources

Related Materials

Patient Imagery

CHAEN Statement on Covid-19 Vaccines

To date, there are no medical or scientific concerns preventing people with HAE from getting the COVID-19 vaccine, though it has not been specifically studied in HAE patients. CHAEN recommends that patients with HAE receive the COVID-19 vaccine.

Independently of HAE, individuals with allergic reactions to known components of the vaccine should avoid the vaccine and discuss options with their healthcare provider. For more general vaccine allergy concerns please refer to this site:

foodallergycanada.ca/new-covid-19-pfizer-vaccine-and-allergy-updates-from-health-canada-and-csaci/

Disclaimer:

The evidence regarding COVID-19 is evolving rapidly. This statement was prepared on January 12, 2021. The above statements may be subject to change. Please contact your local health care provider and refer to local public health guidance for up-to-date information. CHAEN assumes no responsibility or liability arising from any error or omission or from the use of any information contained herein. You must not rely on the information in this document as an alternative to medical advice from your health care provider.

Funding for Canadian Hereditary Angioedema Network has been generously provided by unrestricted grants from: